Saturday, March 8, 2014
A few comments on growing up with special needs and the kindness of strangers
Having a sibling with special needs isn't the Greek tragedy a lot of people think. There can be a lot of positives, it was during one of Beau's many hospitalizations that I had the inspiration that would lead me to my calling as a nurse. But its not exactly easy all the same. There's a little wound that you usually coverup from most people, but that runs so deep it could practically drill through your bones. And at the center of that wound is a guilt you can't logically justify, but that doesn't ever go away. I think the only way to do it is to open up the wound you try so hard to keep scabbed over and scrape the infected edges, completely clean it out- like an IND for your soul. I love my little brother in a way I can't explain to anybody, though I'm pretty sure my older brother understands. But some days are harder than others. Today was one of those days. And to the women who asked me if we were all ok, thank you. I'm sorry if I snapped at you. I was too emotionally overwhelmed to accept your compassion, but I appreciate it all the same. I wish you nothing but all the goodness and love you could have in this world. So if you ever see a family like ours struggling, thank you for your kind words. Never doubt that they make things better, even if we don't say so.
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